Last Thursday night I went out for girls night for the first time in a very, very, very long time. My sister (Kelly) and her daughter (Dawn) invited me to dinner and paint night ~ I LOVE food and creativity and them,so I was thrilled. Now here’s the kicker ~ these plans started to be made about a month ago, with just the paint night 🙂
I thought “2 maybe 3 hours if I include travel time” and they were driving so even that took some pressure off, surly I could do this! I do that much when we have to go grocery shopping! Okay! So, I prepared, we had the date locked in – nothing for the day before or the day after, whew! Then it got closer, leg spasms started that Monday, I was like NO! Don’t mess up my outing!!! Several warm baths with tea tree and peppermint oils over the next two days and they eased, again, Whew! Then I learn my sweet niece wants us to make it a full girls night out and take us to one of her favourite restaurants for dinner too ~ very sweet and I love food (did I already say that? *giggle*
But also running through my mind was “Oh my that’s another 2 hours at least!” *panic!*breathe* “I can do this” started running through my head like a mantra/ locomotive.
The day before came, we had a few errands to take care of then rested the rest of the day. Ate a good healthy meal, lots of water and soaked in my warm tea tree peppermint oil bath, bedtime early, slept in later than usual, took my time getting ready ~ no, we can’t just jump up and get dressed, makeup etc anymore, this takes thought, even if its just casual! Time came, Kelly arrived and I was still feeling good! YAY!!! We visited at the house for a bit with our Mother, then headed out for our adventure, it was 4:30pm.
We had a blast, dinner was totally yummy, we caught up on the goings on in our lives and giggled and of course ate way too much and still had some to take home. Then off to our painting session, which was also so much fun! We arrived back home about 9-9:30pm, went inside to show off our “talents” to Mom/Grandma, none of us will be hanging in a museum anytime soon, but Mother being the good Mom she is has hung mine prominently in our home *blushes*
Sounds like all went well, right? Well it did! but here is the rest of that MS kicker…. Not only do we have to prepare a day or two in advance, then after we pretend to be somewhat normal, we have to pay for it……. Friday wasn’t too bad, higher fatigue, some muscle stiffness, mostly in arm muscles I haven’t used in I don’t know how long, lol
But now today, Saturday, first apparently the fatigue had gotten to me because I slept nearly 15 hours and still woke up tired! muscles are all screaming and spasming and I have the loveliest shades of bruising you have ever seen thanks to afore mentioned spasms.
So if you have a friend or loved one that has MS, or fibromyalgia, or lupus, or other such chronic painful illness. Don’t take it personally if we don’t accept every invitation, and please don’t stop inviting us, just keep in mind that when we accept we literally have to nearly block off a couple of days before and after the event, even if it is only 4 or 6 hours…….. and sometimes we really need to do it, so please be patient, we want to hang out, we still want to do stuff other than doctor visits, its just harder now.
Much love and peaceful blessings to all,
Kristine Marie Naef